Article

Kellett, Salomey, Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:10.1080/23995270.2024.2366153)

Semrov, Ana, Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Cortina-Borja, Mario and Rahi, Jugnoo (2023) Individual, family, and environmental determinants of vision-related quality of life of children and young people with visual impairment. PLoS ONE, 18 (11):e0294532. pp. 1-14. ISSN 1932-6203 (Online) (doi:10.1371/journal.pone.0294532)

Chen, Benson, Galus, Tomasz, Archer, Stephanie, Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Horton, Mike, Pesudovs, Konrad, Braithwaite, Tasanee and Yu-Wai-Man, Patrick (2022) Capturing the experiences of patients with inherited optic neuropathies: a systematic review of patient-reported outcome measures (PROMs) and qualitative studies. Graefe's Archive for Clinical and Experimental Ophthalmology. ISSN 0721-832X (Print), 1435-702X (Online) (doi:10.1007/s00417-021-05534-0)

Robertson, Alexandra, Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340 and Rahi, Jugnoo (2021) This is me: A qualitative investigation of young people’s experience of growing up with visual impairment. PLoS ONE, 16 (7):e0254009. ISSN 1932-6203 (Online) (doi:10.1371/journal.pone.0254009)

Robertson, Alexandra O., Tadić, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Horvat-Gitsels, Lisanne A., Cortina-Borja, Mario and Rahi, Jugnoo S. (2021) Differences in self-rated versus parent proxy-rated vision-related quality of life and functional vision of visually impaired children. American Journal of Ophthalmology, 230. pp. 167-177. ISSN 0002-9394 (doi:10.1016/j.ajo.2021.05.017)

Robertson, Alexandra O., Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340 and Rahi, Jugnoo S. (2020) Attitudes, experiences, and preferences of ophthalmicprofessionals regarding routine use of patient-reported outcome measures in clinical practice. PLoS ONE, 15 (12):e0243563. ISSN 1932-6203 (Online) (doi:10.1371/journal.pone.0243563)

Robertson, Alexandra O., Tadić, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Cortina-Borja, Mario and Rahi, Jugnoo (2020) Feasibility of using patient-reported outcome measures with visually impaired children/young people attending paediatric ophthalmology clinics. Archives of Diseases in Childhood, 106 (7). pp. 687-692. ISSN 0003-9888 (Print), 1468-2044 (Online) (doi:10.1136/archdischild-2020-318991)

Kellett, Salomey, Rahi, Jugnoo S, Dick, Andrew D, Knowles, Rachel, Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340 and Solebo, Ameenat Lola (2020) UNICORNS: Uveitis in childhood prospective national cohort study protocol [version 1; peer review: 1 approved, 1 approved with reservations]. F1000Research, 9:1196. ISSN 2046-1402 (Online) (doi:10.12688/f1000research.26689.1)

Robertson, Alexandra, Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Cortina-Borja, Mario and Rahi, Jugnoo (2020) A patient-reported outcome measure of functional vision for children and young people aged 8 to 18 years with visual impairment. American Journal of Ophthalmology, 219. pp. 141-153. ISSN 0002-9394 (Print), 1879-1891 (Online) (doi:10.1016/j.ajo.2020.04.021)

Elsman, Elen B. M., Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Peeters, Carel F. W., van Rens, Ger H. M. B., Rahi, Jugnoo S. and van Nispen, Ruth M. A. (2019) Cross-cultural validation of the functional vision questionnaire for children and young people (FVQ_CYP) with visual impairment in the Dutch population: challenges and opportunities. BMC Medical Research Methodology, 19:221. ISSN 1471-2288 (Online) (doi:10.1186/s12874-019-0875-9)

Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Robertson, Alexandra, Cortina-Borja, Mario and Rahi, Jugnoo (2019) Age-and stage-appropriate measurement of vision-related quality of life (VQoL) of children and young people with visual impairment. Ophthalmology, 127 (2). pp. 249-260. ISSN 0161-6420 (doi:10.1016/j.ophtha.2019.08.033)

Robertson, A. O., Tadić, V. ORCID: https://orcid.org/0000-0003-3982-0340 and Rahi, J. S. (2017) Transition from paediatric to adult ophthalmology services: what matters most to young people with visual impairment. Eye, 32 (2). pp. 406-414. ISSN 0950-222X (Print), 1476-5454 (Online) (doi:10.1038/eye.2017.203)

Tadić, V. ORCID: https://orcid.org/0000-0003-3982-0340 and Rahi, J. S. (2017) One size doesn’t fit all: time to revisit patient-reported outcome measures (PROMs) in paediatric ophthalmology? Eye, 31 (4). pp. 511-518. ISSN 0950-222X (Print), 1476-5454 (Online) (doi:10.1038/eye.2016.316)

Knowles, Rachel Louise ORCID: https://orcid.org/0000-0002-5490-7682, Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Hogan, Ailbhe, Bull, Catherine, Rahi, Jugnoo Sangeeta and Dezateux, Carol (2016) Self-reported health experiences of children living with congenital heart defects: Including patient-reported outcomes in a national cohort study. PLOS ONE, 11 (8):e0159326. ISSN 1932-6203 (doi:10.1371/journal.pone.0159326)

Tadić, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Cumberland, Phillippa M., Lewando-Hundt, Gillian and Rahi, Jugnoo S. (2016) Do visually impaired children and their parents agree on the child's vision-related quality of life and functional vision? British Journal of Ophthalmology, 2017:101. pp. 244-250. ISSN 0007-1161 (Print), 1468-2079 (Online) (doi:10.1136/bjophthalmol-2016-308582)

Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Cooper, Andrew, Cumberland, Phillippa, Lewando-Hundt, Gillian and Rahi, Jugnoo S. (2016) Measuring the quality of life of visually impaired children: First stage psychometric evaluation of the Novel VQoL_CYP Instrument. PLOS ONE, 11 (2). e0146225. ISSN 1932-6203 (Online) (doi:10.1371/journal.pone.0146225)

Tadić, V. ORCID: https://orcid.org/0000-0003-3982-0340, Hundt, G. Lewando, Keeley, S. and Rahi, J. S. (2014) Seeing it my way: living with childhood onset visual disability. Child: Care, Health and Development, 41 (2). pp. 239-248. ISSN 0305-1862 (Print), 1365-2214 (Online) (doi:10.1111/cch.12158)

Tadić, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Hogan, Ailbhe, Sobti, Nidhi, Knowles, Rachel Louise and Rahi, Jugnoo Sangeeta (2013) Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review. British Journal of Ophthalmology, 97 (11). pp. 1369-1381. ISSN 0007-1161 (Print), 1468-2079 (Online) (doi:10.1136/bjophthalmol-2013-303350)

Tadić, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Cooper, Andrew, Cumberland, Phillippa, Lewando-Hundt, Gillian and Rahi, Jugnoo S. (2013) Development of the functional vision questionnaire for children and young people with visual impairment: The FVQ-CYP. Ophthalmology, 120 (12). pp. 2725-2732. ISSN 0161-6420 (doi:10.1016/j.ophtha.2013.07.055)

Tadić, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Pring, Linda and Dale, Naomi (2013) Story discourse and use of mental state language between mothers and school-aged children with and without visual impairment. International Journal of Language & Communication Disorders, 48 (6). pp. 679-688. ISSN 1368-2822 (Print), 1460-6984 (Online) (doi:10.1111/1460-6984.12040)

Dale, N. J., Tadić, V. ORCID: https://orcid.org/0000-0003-3982-0340 and Sonksen, P. (2013) Social communicative variation in 1-3-year-olds with severe visual impairment. Child: health, care and development, 40 (2). pp. 158-164. ISSN 0305-1862 (Print), 1365-2214 (Online) (doi:10.1111/cch.12065)

Rahi, Jugnoo S., Tadić, Valerie ORCID: https://orcid.org/0000-0003-3982-0340, Keeley, Sarah and Lewando-Hundt, Gillian (2010) Capturing children and young people's perspectives to identify the content for a novel vision-related quality of life instrument. Ophthalmology: Journal of The American Academy of Ophthalmology, 118 (5). pp. 819-824. ISSN 0161-6420 (doi:10.1016/j.ophtha.2010.08.034)

Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Pring, Linda and Dale, Naomi (2010) Are language and social communication intact in children with congenital visual impairment at school age? Journal of Child Psychology and Psychiatry and Allied Disciplines, 51 (6). pp. 696-705. ISSN 0021-9630 (Print), 1469-7610 (Online) (doi:10.1111/j.1469-7610.2009.02200.x)

Tadić, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Hamblion, Esther Louise, Keeley, Sarah, Cumberland, Phillippa, Lewando Hundt, Gillian and Rahi, Jugnoo Sangeeta (2010) ‘Silent Voices’ in health services research: Ethnicity and socioeconomic variation in participation in studies of quality of life in childhood visual disability. Investigative Opthalmology & Visual Science, 51 (4). pp. 1886-1890. ISSN 1552-5783 (doi:10.1167/iovs.09-4522)

Tadić, Valerie ORCID: https://orcid.org/0000-0003-3982-0340, Pring, Linda and Dale, Naomi (2009) Attentional processes in young children with congenital visual impairment. British Journal of Developmental Psychology, 27 (2). pp. 311-330. ISSN 0261-510X (Print), 2044-835X (Online) (doi:10.1348/026151008X310210)

Pring, Linda, Woolf, Katherine and Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340 (2008) Melody and pitch processing in five musical savants with congenital blindness. Perception, 37 (2). pp. 290-307. ISSN 0301-0066 (Print), 1468-4233 (Online) (doi:10.1068/p5718)

Book Section

Pring, Linda and Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340 (2010) Sensory disorders: The behavioral and cognitive manifestations of blindness in children. In: Nass, Ruth D. and Yitzchak, Frank, (eds.) Cognitive and Behavioral Abnormalities of Pediatric Diseases. Oxford University Press (OUP) USA, pp. 531-543.

Pring, Linda and Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340 (2004) More than meets the eye: Blindness, talent and autism. In: Pring, Linda, (ed.) Autism and blindness: Research and reflections. John Wiley & Sons, pp. 50-73. ISBN 978-1861564443

Conference Proceedings

Kellet, S, Petrushkin, J, Ashworth, J, Connor, A, McLoone, E, Schmoll, C, Sharma, S, Agorogiannis, E, Williams, J, Choi, J, Injarie, A, Puvanachandra, N, Watts, P, Shafi, A, Millar, E, Long, V, Kumar, A, Hughes, E, Ritchie, A, Gonzalez-Martin, J, Pradeep, A, Anwar, S, Warrior, K, Muthusamy, B, Pilling, R, Benzimra, J, Reddy, A, Bush, K, Pharoah, D, Falzon,, K, O’Colmain, U, Knowles, R, Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Dick, A, Rahi, J and Solebo, A (2023) 2. Pathways to detection of non-infectious childhood uveitis in the UK: findings from the UNICORN cohort study. In: BMJ Ophthalmology Open. BMJ Publishing Group, A1-A1. ISSN 2044-6055 (doi:10.1136/bmjophth-2023-BIPOSA.2)

Semrov, Ana, Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340, Cortina Borja, Mario and Rahi, Jugnoo (2023) Determinants of vision-related quality of life of children and young people with visual impairment. In: Investigative Ophthalmology and Visual Science. ARVO Annual Meeting Abstracts, 64 (8). Association for Research in Vision and Ophthalmology (ARVO), Rockville, MD, p. 871. ISSN 0146-0404 (Print), 1552-5783 (Online)

Semrov, Ana, Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340 and Rahi, Jugnoo (2023) Vision-related quality of life and mental health outcomes of children and young people with visual impairment and their carers [ISPOR Abstracts 07 May 2023 - 10 May 2023]. In: Value in Health. Elsevier - Science Direct, New York, S318-S318. ISSN 1098-3015 (Print), 1524-4733 (Online) (doi:10.1016/j.jval.2023.03.1816)

Solebo, Ameenat Lola, Kellet, Salomey, Rahi, Jugnoo, Dick, Andrew D., Knowles, Rachel and Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340 (2022) Perceptions and experiences of health care service use during the pandemic for children with uveitis: UNICORNS-C19 study. In: Investigative Ophthalmology and Visual Science. 2022 ARVO Annual Meeting, Denver, CO, 1st - 4th May 2022, 63 (7). Association for Research in Vision and Ophthalmology (ARVO), Rockville, USA, 4468 -A0178. ISSN 0146-0404 (Print), 1552-5783 (Online)

Salt, Alison, Dale, Naomi, Osborne, Jackie and Tadic, Valerija ORCID: https://orcid.org/0000-0003-3982-0340 (2005) Development of a national monitoring protocol (developmental guide) for children with visual impairment 0-36 months. In: International Congress Series. Elsevier, pp. 293-297. ISSN 0531-5131 (doi:10.1016/j.ics.2005.05.204)