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A patient-reported outcome measure of functional vision for children and young people aged 8 to 18 years with visual impairment

A patient-reported outcome measure of functional vision for children and young people aged 8 to 18 years with visual impairment

Robertson, Alexandra, Tadic, Valerija ORCID: 0000-0003-3982-0340, Cortina-Borja, Mario and Rahi, Jugnoo (2020) A patient-reported outcome measure of functional vision for children and young people aged 8 to 18 years with visual impairment. American Journal of Ophthalmology. ISSN 0002-9394 (Print), 1879-1891 (Online) (In Press) (doi:https://doi.org/10.1016/j.ajo.2020.04.021)

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Abstract

Purpose: To develop age-appropriate extensions of a patient-reported outcome measure for capturing the functional impact of visual impairment on daily activities of children and young people aged 8 up to 18 years.

Design: Questionnaire development and validation study.

Setting: Pediatric Ophthalmology departments at Great Ormond Street Hospital and Moorfields Eye Hospital, and, in the final study phase, 20 further UK hospitals.

Participants: Children and young people (aged 6-19 years) with visual impairment (acuity of the logarithm of the minimum angle of resolution (LogMAR) worse than 0.50 in the better eye) due to any cause but without significant non-ophthalmic impairments.

Methods: We used our prototype FVQ_CYP for 10-15 year olds as the foundation. Twenty-nine semi-structured interviews confirmed relevance of existing, and identified new, age-specific items. Twenty-eight cognitive interviews captured information regarding comprehensibility and format. The FVQ_Child (8-12 years) and FVQ_Young Person (13-18 years), were evaluated with a national sample of 113 children and 96 young people using Rasch analysis.

Results: Issues emerging from interviews with children and young people were largely congruent with those elicited originally with 10-15 year olds. The 28-item FVQ_Child and 38-item FVQ_Young Person versions have goodness-of-fit statistics within the interval 0.5, 1.5 and person separation values of 5.87 and 6.09 respectively. Twenty-four overlapping ‘core’ items enabled their calibration on the same measurement scale. Correlations with acuity (r = 0.47) demonstrated construct validity.

Conclusions: The FVQ_C and FVQ_Young Person are robust age-appropriate versions of the FVQ_CYP which can be used cross-sectionally or sequentially/longitudinally across the age-range of 8-18 years in clinical practice and research.

Item Type: Article
Uncontrolled Keywords: functional vision, visual impairment, children and young people
Subjects: R Medicine > R Medicine (General)
Faculty / Department / Research Group: Faculty of Education, Health & Human Sciences
Faculty of Education, Health & Human Sciences > Applied Psychology Research Group
Faculty of Education, Health & Human Sciences > Centre for Applied Health Research
Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development
Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development > Centre for Vulnerable Children and Families
Last Modified: 29 May 2020 11:23
Selected for GREAT 2016: None
Selected for GREAT 2017: None
Selected for GREAT 2018: None
Selected for GREAT 2019: None
Selected for REF2021: REF 6
URI: http://gala.gre.ac.uk/id/eprint/27983

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