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Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review

Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review

Tadić, Valerija ORCID: 0000-0003-3982-0340, Hogan, Ailbhe, Sobti, Nidhi, Knowles, Rachel Louise and Rahi, Jugnoo Sangeeta (2013) Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review. British Journal of Ophthalmology, 97 (11). pp. 1369-1381. ISSN 0007-1161 (Print), 1468-2079 (Online) (doi:

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To identify patient-reported outcome measures (PROMs) specifically developed and used to assess the impact of ophthalmic disorders in children and to systematically assess their quality as a basis for recommendations about their use in clinical and research settings.

A systematic review of the literature was performed in MEDLINE, EMBASE, PsychINFO, CINAHL and AMED, supplemented by a grey literature search. Papers reporting development and validation of questionnaire instruments for assessing patient-reported outcomes of an ophthalmic disorder in patients aged 2–18 years were included. Quality was assessed by examining the purpose and psychometric properties of the instruments. Strengths and limitations were summarised with recommendations regarding use.

Search identified 17 instruments. Of these, 11 were condition-specific and six were intended for a broader population of children and young people with visual impairment regardless of the ophthalmic condition. Three were developed for use in a specific trial and two are still in development.

Paediatric ophthalmology PROM development and application is a developing field and new instruments are needed. There is scope for improvement in this area through (a) clarity of definitions of the underlying constructs intended to be measured at the onset of development of new instruments, (b) application of child-centred approaches and (c) adherence to extant guidance and best practice in questionnaire instrument development.

Item Type: Article
Uncontrolled Keywords: Patient-reported outcome measures, visual impairment, paediatric ophthalmology
Subjects: R Medicine > RE Ophthalmology
Faculty / Department / Research Group: Faculty of Education, Health & Human Sciences
Faculty of Education, Health & Human Sciences > Applied Psychology Research Group
Faculty of Education, Health & Human Sciences > Department of Psychology, Social Work & Counselling
Last Modified: 03 Jun 2019 16:04
Selected for GREAT 2016: None
Selected for GREAT 2017: None
Selected for GREAT 2018: None
Selected for GREAT 2019: None
Selected for REF2021: None

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