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One size doesn’t fit all: time to revisit patient-reported outcome measures (PROMs) in paediatric ophthalmology?

One size doesn’t fit all: time to revisit patient-reported outcome measures (PROMs) in paediatric ophthalmology?

Tadić, V. ORCID: 0000-0003-3982-0340 and Rahi, J. S. (2017) One size doesn’t fit all: time to revisit patient-reported outcome measures (PROMs) in paediatric ophthalmology? Eye, 31 (4). pp. 511-518. ISSN 0950-222X (Print), 1476-5454 (Online) (doi:https://doi.org/10.1038/eye.2016.316)

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Abstract

The purpose of this article is to summarise methodological challenges and opportunities in the development and application of patient reported outcome measures (PROMs) for the rare and complex population of children with visually impairing disorders. Following a literature review on development and application of PROMs in children in general, including those with disabilities and or/chronic condition, we identified and discuss here 5 key issues that are specific to children with visual impairment: (1) the conflation between theoretically distinct vision-related constructs and outcomes, (2) the importance of developmentally appropriate approaches to design and application of PROMs, (3) feasibility of standard questionnaire formats and administration for children with different levels of visual impairment, (4) feasibility and nature of self-reporting by visually impaired children, and (5) epidemiological, statistical and ethical considerations. There is an established need for vision-specific age-appropriate PROMs for use in paediatric ophthalmology, but there are significant practical and methodological challenges in developing and applying appropriate measures. Further understanding of the characteristics and needs of visually impaired children as questionnaire respondents is necessary for development of quality PROMs and their meaningful application in clinical practice and research.

Item Type: Article
Uncontrolled Keywords: Health-Related Quality of Life; quality of life; Visual Impairment, vision-related quality of life, Patient Reported Outcome Measure
Subjects: R Medicine > RE Ophthalmology
Faculty / Department / Research Group: Faculty of Education & Health
Faculty of Education & Health > Applied Psychology Research Group
Faculty of Education & Health > Department of Psychology, Social Work & Counselling
Last Modified: 17 May 2019 11:15
Selected for GREAT 2016: None
Selected for GREAT 2017: None
Selected for GREAT 2018: None
Selected for GREAT 2019: GREAT 5
URI: http://gala.gre.ac.uk/id/eprint/23292

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