AIS, scoliosis, adolescent idiopathic scoliosis, qualitative, systematic review

Essex, Ryan ORCID: 0000-0003-3497-3137 , Bruce, Gemma, Dibley, Molly, Newton, Paul ORCID: 0000-0002-8525-6763 , Thompson, Trevor ORCID: 0000-0001-9880-782X , Swaine, Ian ORCID: 0000-0002-3747-1370 and Dibley, Lesley ORCID: 0000-0001-7964-7672 (2022) A systematic scoping review and textual narrative synthesis of the qualitative evidence related to adolescent idiopathic scoliosis. International Journal of Orthopaedic and Trauma Nursing, 45:100921. ISSN 1878-1241 (doi:https://doi.org/10.1016/j.ijotn.2022.100921)

AIS; scoliosis; nursing; qualitative

Essex, Ryan ORCID: 0000-0003-3497-3137 and Dibley, Lesley ORCID: 0000-0001-7964-7672 (2023) Adolescent idiopathic scoliosis: what we know, what we don’t know, and implications for practice. Nursing Children and Young People. ISSN 2046-2336 (In Press)

Advice line; Inflammatory Bowel Disease; Pandemic; Service evaluation; Specialist nurses

Avery, Pearl, Younge, Lisa, Dibley, Lesley ORCID: 0000-0001-7964-7672 and Segal, Jonathan (2021) Inflammatory bowel disease advice lines during the COVID-19 pandemic: a retrospective service evaluation. Gastrointestinal Nursing, 19 (3). pp. 38-49. ISSN 1479-5248 (Print), 2052-2835 (Online) (doi:https://doi.org/10.12968/gasn.2021.19.3.38)

Assessment, Continence, Inflammatory bowel disease

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Norton, Christine, Cotterill, Nikki and Bassett, Paul (2016) Development and initial validation of a disease-specific bowel continence questionnaire for inflammatory bowel disease patients: the ICIQ-IBD. European Journal of Gastroenterology & Hepatology, 28 (2). pp. 233-239. ISSN 0954-691X (Print), 1473-5687 (Online) (doi:https://doi.org/10.1097/MEG.0000000000000513)

Bowel dysfunction, Constipation, Faecal incontinence, Multiple sclerosis, Qualitative research

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Coggrave, Maureen, McClurg, Doreen, Woodward, Sue and Norton, Christine (2017) "It's just horrible": a qualitative study of patients' and carers' experiences of bowel dysfunction in Multiple Sclerosis. Journal of Neurology, 264 (7). pp. 1354-1361. ISSN 0340-5354 (Print), 1432-1459 (Online) (doi:https://doi.org/10.1007/s00415-017-8527-7)

Coeliac disease, Crohn’s disease, ethnic minority, experiences, infammatory bowel disease, irritable bowel syndrome, systematic scoping review, ulcerative colitis

Ahmed, Salina, Newton, Paul D. ORCID: 0000-0002-8525-6763 , Ojo, Omorogieva ORCID: 0000-0003-0071-3652 and Dibley, Lesley ORCID: 0000-0001-7964-7672 (2021) Experiences of ethnic minority patients who are living with a primary chronic bowel condition: a systematic scoping review with narrative synthesis. BMC Gastroenterology, 21:322. ISSN 1471-230X (Online) (doi:https://doi.org/10.1186/s12876-021-01857-8)

Constipation, Qualitative research, Quality of life, Symptom assessment, Terminology

Dimidi, Eirini, Dibley, Lesley ORCID: 0000-0001-7964-7672 , Cotterill, Nikki, Scott, Mark, Whelan, Kevin, Knowles, Chjarles and Norton, Christine (2016) Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients. Gastrointestinal Nursing, 14 (8). pp. 29-38. ISSN 1479-5248 (doi:https://doi.org/10.12968/gasn.2016.14.8.29)

Crohn's disease, Distress, Inflammatory bowel disease, Ulcerative colitis

Woodward, Sue, Dibley, Lesley ORCID: 0000-0001-7964-7672 , Coombes, Sarah, Bellamy, Andrew, Clark, Callum, Czuber-Dochan, Wladzia, Everelm, Leslie, Kutner, Sandra, Sturt, Jackie and Norton, Christine (2016) Identifying disease-specific distress in patients with inflammatory bowel disease. British Journal of Nursing, 25 (12). pp. 649-660. ISSN 0966-0461 (doi:https://doi.org/10.12968/bjon.2016.25.12.649)

Crohn’s anal fistula, patient reported outcomes, quality of life

Adegbola, Samuel O, Dibley, Lesley ORCID: 0000-0001-7964-7672 , Sahnan, Kapil, Wade, Tiffany, Verjee, Azmina, Sawyer, Rachel, Mannick, Sameer, McCluskey, Damian, Bassett, Paul, Yassin, Nuha, Warusavitarne, Janindra, Faiz, Omar, Phillips, Robin, Tozer, Phil J, Norton, Christine and Hart, Ailsa L (2020) Development and initial psychometric validation of a patient reported outcome measure for Crohn’s perianal fistula – the Crohn’s Anal Fistula Quality of Life (CAF-QoL) scale. Gut, 70 (9). pp. 1649-1656. ISSN 0017-5749 (Print), 1468-3288 (Online) (doi:https://doi.org/10.1136/gutjnl-2019-320553)

Delphi, IBD nursing, Inflammatory bowel disease, Research priorities

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Bager, Palle, Czuber-Dochan, Wladyslawa, Farrell, Dawn, Jeslness-Jorgensen, Lars-Petter, Kemp, Karen and Norton, Christine (2016) Identification of research priorities for Inflammatory Bowel Disease nursing in Europe: a Nurses-European Crohn’s & Colitis Organisation Delphi survey. Journal of Crohn's & Colitis, 11 (3). pp. 353-359. ISSN 1873-9946 (Print), 1876-4479 (Online) (doi:https://doi.org/10.1093/ecco-jcc/jjw164)

Gay, Inflammatory bowel disease, Lesbian, Qualitative

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Norton, Christine, Schaub, Jason and Bassett, Paul (2014) Experiences of gay and lesbian patients with inflammatory bowel disease: a mixed methods study. Gastrointestinal Nursing, 12 (6). pp. 19-30. ISSN 1479-5248 (doi:https://doi.org/10.12968/gasn.2014.12.6.19)

Heidegger, philosophy, pre-understanding, thrownness, ready-at-hand, research

Dibley, Lesley ORCID: 0000-0001-7964-7672 (2022) Seeking Heidegger in research data: thinking about connections between philosophy and findings. In: Crowther, Susan and Thomson, Gill, (eds.) Hermeneutic Phenomenology in Health and Social Care Research. Routledge, London, pp. 93-109. ISBN 9781003081661 (doi:https://doi.org/10.4324/9781003081661-6)

Inflammatory bowel disease, Faecal incontinence, Nurse-led intervention

Norton, Christine, Dibley, Lesley B. ORCID: 0000-0001-7964-7672 , Hart, Ailsa, Duncan, Julie, Emmanuel, Anton, Knowles, Charles H., Stevens, Natasha, Terry, Helen, Verjee, Azmina, Kerry, Sally and Hounsome, Natalia (2015) Faecal incontinence intervention study (FINS): self-management booklet information with or without nurse support to improve continence in people with inflammatory bowel disease: study protocol for a randomized controlled trial. Trials, 16:444. pp. 1-9. ISSN 1745-6215 (Online) (doi:https://doi.org/10.1186/s13063-015-0962-0)

Knowledge Exchange; chronic illness; Gait; cardio vascular; IBD; diabetes; swallowing difficulties; user involvement

Markowski, Marianne ORCID: 0000-0003-4652-3168 , Rivoal, Dominique, Dibley, Lesley ORCID: 0000-0001-7964-7672 , Patchay, Sandhiran ORCID: 0000-0002-7013-8940 , Ojo, Omorogieva ORCID: 0000-0003-0071-3652 , Hansjee, Dharinee and Adjaye-Gbewonyo, Kafui ORCID: 0000-0002-8919-6518 (2023) Living well with chronic illness: a 10-minute summary video of the Knowledge Exchange event. [Video]

LGBTQAI+; inflammatory bowel disease; healthcare

Dibley, Lesley ORCID: 0000-0001-7964-7672 and Duffy, Mel (2023) Access to inflammatory bowel disease healthcare for patients with LGBTQI+ identities. The Lancet Gastroenterology and Hepatology, 23 (00352):7. ISSN 2468-1253 (doi:https://doi.org/10.1016/S2468-1253(23)00352-7)

Reflection; resilience; reset

Dibley, Lesley ORCID: 0000-0001-7964-7672 (2021) Reflection, resilience, reset: overcoming obstacles to grow a nursing research career. In: Gastrointestinal Nurses’ Congress of Australia (GENCA) conference, 28-30th May 2021, Gold Coast, Brsibane, Australia (delivered online). (Unpublished)

adolescent idiopathic scoliosis, outcomes, systematic review

Essex, Ryan ORCID: 0000-0003-3497-3137 , Bruce, Gemma, Dibley, Molly, Newton, Paul ORCID: 0000-0002-8525-6763 and Dibley, Lesley ORCID: 0000-0001-7964-7672 (2021) A systematic scoping review and textual narrative synthesis of long-term health-related quality of life outcomes for adolescent idiopathic scoliosis. International Journal of Orthopaedic and Trauma Nursing, 40:100844. ISSN 1878-1241 (doi:https://doi.org/10.1016/j.ijotn.2021.100844)

attributes; barriers; facilitators; inflammatory bowel diseases; ostomy

Essex, Ryan ORCID: 0000-0003-3497-3137 , Booth, Lesley, Sirois, Fuschia, Burch, Jennifer and Dibley, Lesley ORCID: 0000-0001-7964-7672 (2024) A scoping review of the qualitative literature reporting experiences of living with a stoma for inflammatory bowel disease. Journal of Advanced Nursing. ISSN 0309-2402 (Print), 1365-2648 (Online) (doi:https://doi.org/10.1111/jan.16254)

attrition; fecal incontinence; inflammatory bowel disease; nurse-led intervention

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Hart, Ailsa, Duncan, Julie, Knowles, Charles H, Kerry, Sally, Lanz, Doris, Berdunov, Vladislav, Madurasinghe, Vichithranie W, Wade, Tiffany, Terry, Helen, Verjee, Azmina, Fader, Mandy and Norton, Christine (2023) Supported intervention versus intervention alone for management of fecal incontinence in patients with Inflammatory Bowel Disease: a multicentre randomised controlled trial with qualitative evaluation. Journal of Wound, Ostomy and Continence Nursing, 50 (3). pp. 235-244. ISSN 1071-5754 (Print), 1528-3976 (Online) (doi:https://doi.org/10.1097/WON.0000000000000979)

bowel control, fecal incontinence, inflammatory bowel disease, screening, urgency

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Hart, Ailsa, Duncan, Julie, Knowles, Charles H, Kerry, Sally M, Lanz, D, Madurasinghe, V, Wade, Tiffany, Terry, Helen, Verjee, Azmina, Fader, Mandy and Norton, Christine (2020) Clinician administered and self-report survey both effective for identifying fecal incontinence in patients with Inflammatory Bowel Disease. Digestive Diseases and Sciences, 66 (6). pp. 2024-2031. ISSN 0163-2116 (Print), 1573-2568 (Online) (doi:https://doi.org/10.1007/s10620-020-06418-9)

burnout, clinical nurse specialist, clinical supervision, stress, wellbeing

Younge, Lisa, Sufi, Halima and Dibley, Lesley ORCID: 0000-0001-7964-7672 (2020) Regular clinical supervision to enhance wellbeing in inflammatory bowel disease specialist nurses: a small pilot study. Gastrointestinal Nursing, 18 (3). pp. 36-42. ISSN 1479-5248 (Print), 2052-2835 (Online) (doi:https://doi.org/10.12968/gasn.2020.18.3.36)

burnout; clinical nurse specialists; inflammatory bowel disease

Kemp, Karen, Duncan, Julie, Mason, Isobel, Younge, Lisa and Dibley, Lesley ORCID: 0000-0001-7964-7672 (2022) Scoping review with textual narrative synthesis of the literature reporting stress and burn-out in specialist nurses: making the case for inflammatory bowel disease nurse specialists. BMJ Open Gastroenterology, 9 (1):e000852. ISSN 2054-4774 (Online) (doi:https://doi.org/10.1136/bmjgast-2021-000852)

chronic illness, Goffman, inflammatory bowel disease, kinship stigma, nursing, interpretive phenomenology

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Williams, Ellen and Young, Patricia (2019) When family don’t acknowledge: a hermeneutic study of the experience of kinship stigma in community-dwelling people with inflammatory bowel disease. Qualitative Health Research. ISSN 1049-7323 (Print), 1552-7557 (Online) (doi:https://doi.org/10.1177/1049732319831795)

clinical academic career; research involvement; addressing challenges

Dibley, Lesley ORCID: 0000-0001-7964-7672 (2021) Getting involved: leading the way for gastrointestinal nursing research. In: Gastrointestinal Nurses’ Congress of Australia (GENCA) conference, 28th-30th May 2021, Gold Coast, Brisbane, Australia (delivered online). (Unpublished)

consensus, N-ECCO, Crohn's disease, Ulcerative colitis

Kemp, Karen, Dibley, Lesley ORCID: 0000-0001-7964-7672 , Chauhan, Usha, Greveson, Kay, Jaghult, Susanna, Ashton, Katherine, Buckton, Stephanie, Duncan, Julie, Hartmann, Petra, Ipenburg, Nienke, Moortgat, Liesbeth, Theeuwen, Rosaline, Verwey, Marthe, Younge, Lisa, Sturm, Andreas and Bager, Palle (2018) 2nd N-ECCO consensus statements on the European nursing roles in caring for patients with Crohn's Disease or Ulcerative Colitis. Journal of Crohn's & Colitis, 12 (7). pp. 760-776. ISSN 1873-9946 (doi:https://doi.org/10.1093/ecco-jcc/jjy020)

decision-making; inflammatory bowel disease; qualitative; stoma; surgery

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Czuber-Dochan, Wladyslawa, Wade, Tiffany, Duncan, Julie, Burch, Jennie, Warusavitarne, Janindra, Norton, Christine, Artom, Micol, O'Sullivan, Liam, Verjee, Azmina and Cann, Denise (2018) Patient decision-making about emergency and planned stoma surgery for IBD: a qualitative exploration of patient and clinician perspectives. Inflammatory Bowel Diseases, 24 (2). pp. 235-246. ISSN 1078-0998 (Print), 1536-4844 (Online) (doi:https://doi.org/10.1093/ibd/izx043)

endoscopy, gastroscopy, predictors, preparation, ethnicity, language

Essex, Ryan ORCID: 0000-0003-3497-3137 , Cucos, Mihaela and Dibley, Lesley ORCID: 0000-0001-7964-7672 (2020) The impact of language and ethnicity on preparation for endoscopy: A prospective audit of an East London hospital ward. Journal of Evaluation in Clinical Practice, 27 (4). pp. 877-884. ISSN 1356-1294 (Print), 1365-2753 (Online) (doi:https://doi.org/10.1111/jep.13490)

fatigue, fecal incontinence, inflammatory bowel disease, pain, qualitative, self-management, urgency

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Khoshoba, Bernadette, Artom, Micol, Van Loo, Victoria, Sweeney, Louise, Syred, Jonathan, Windgassen, Sula, Moffatt, Georgia and Norton, Christine (2020) Patient strategies for managing the vicious cycle of fatigue, pain, and urgency in inflammatory bowel disease: impact, planning and support. Digestive Diseases and Sciences, 66 (10). pp. 3330-3342. ISSN 0163-2116 (Print), 1573-2568 (Online) (doi:https://doi.org/10.1007/s10620-020-06698-1)

fatigue, inflammatory bowel disease, online, pain, self-management, urgency

Fawson, Sophie, Dibley, Lesley ORCID: 0000-0001-7964-7672 , Smith, Kaylee, Batista, Joanna, Artom, Micol, Windgassen, Sula, Syred, Jonathan, Moss-Morris, Rona and Norton, Christine (2021) Developing an online programme for self-management of fatigue, pain and urgency in inflammatory bowel disease: patients’ needs and wants. Digestive Diseases and Sciences, 67 (7). pp. 2813-2826. ISSN 0163-2116 (Print), 1573-2568 (Online) (doi:https://doi.org/10.1007/s10620-021-07109-9)

hermeneutic phenomenology; Heidegger; Gadamer; qualitative research

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Dickerson, Suzanne, Duffy, Mel and Vandermause, Roxanne (2020) Doing hermeneutic phenomenological research: a practical guide. SAGE Publications Ltd, London. UK. ISBN 978-1526485724

inflammatory bowel disease; interpretive hermeneutic phenomenology; nurses; stigma; qualitative research; Goffman; Heidegger

Dibley, Lesley ORCID: 0000-0001-7964-7672 , Norton, Christine and Whitehead, Elizabeth (2017) The experience of stigma in inflammatory bowel disease: an interpretive (hermeneutic) phenomenological study. Journal of Advanced Nursing, 74 (4). pp. 838-851. ISSN 0309-2402 (Print), 1365-2648 (Online) (doi:https://doi.org/10.1111/jan.13492)

medicine, nursing

Dibley, Lesley ORCID: 0000-0001-7964-7672 (2019) Getting involved in research: a four-step approach for gastrointestinal nurses. Gastrointestinal Nursing, 17 (2). pp. 20-22. ISSN 1479-5248 (doi:https://doi.org/10.12968/gasn.2019.17.2.20)

self-management, pediatric IBD, grounded theory, qualitative study, exploratory study, adolescents, self-care

De Jesus, Hilarious, Ooms, Ann, Norton, Christine, Dibley, Lesley ORCID: 0000-0001-7964-7672 and Croft, Nicholas (2019) Development of self-management in pediatric inflammatory bowel disease: a qualitative exploration. Journal of Nursing Education and Practice, 9 (11). pp. 75-84. ISSN 1925-4040 (Print), 1925-4059 (Online) (doi:https://doi.org/10.5430/jnep.v9n11p75)