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When family don’t acknowledge: a hermeneutic study of the experience of kinship stigma in community-dwelling people with inflammatory bowel disease

When family don’t acknowledge: a hermeneutic study of the experience of kinship stigma in community-dwelling people with inflammatory bowel disease

Dibley, Lesley ORCID: 0000-0001-7964-7672, Williams, Ellen and Young, Patricia (2019) When family don’t acknowledge: a hermeneutic study of the experience of kinship stigma in community-dwelling people with inflammatory bowel disease. Qualitative Health Research. ISSN 1049-7323 (Print), 1552-7557 (Online) (doi:https://doi.org/10.1177/1049732319831795)

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Abstract

Recent evidence suggests that kinship stigma - the experience of being or feeling stigmatised by family members - arises in the stories of people with inflammatory bowel disease (IBD). Adopting Goffman’s definition of stigma as “an attribute which is deeply discrediting,” we used hermeneutic (interpretive) phenomenology to further explore the meaning of kinship stigma for people with IBD and reveal its significance. Eighteen unstructured interviews took place in participants’ own homes in the United Kingdom, between July 2015 and April 2016. Transcripts were analysed using a hermeneutic method to reveal three relational themes and one constitutive pattern. Referring to relevant literature, the presence and impact of kinship stigma on people with IBD is revealed. Kinship stigma - experienced as and meaning a lack of acknowledgement - may have wide-ranging implications for health and social care professionals caring for persons with IBD or other chronic illness and their families.

Item Type: Article
Uncontrolled Keywords: chronic illness, Goffman, inflammatory bowel disease, kinship stigma, nursing, interpretive phenomenology
Faculty / Department / Research Group: Faculty of Education & Health
Faculty of Education & Health > Department of Adult Nursing & Paramedic Science
Faculty of Education & Health > Health & Society Research Group
Related URLs:
Last Modified: 15 Jul 2019 13:58
Selected for GREAT 2016: None
Selected for GREAT 2017: None
Selected for GREAT 2018: None
Selected for GREAT 2019: GREAT 6
URI: http://gala.gre.ac.uk/id/eprint/24205

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