Khair, K., Gibson, F. and Meerabeau, L. (2011) 'Just an unfortunate coincidence': Children's understanding of haemophilia genetics and inheritance. Haemophilia, 17 (3). pp. 440-475. ISSN 1351-8216 (Print), 1365-2516 (Online) (doi:10.1111/j.1365-2516.2010.02448.x)

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Abstract

This paper presents the results of a study talking to children and young people affected with severe haemophilia A and/or haemophilia B about their knowledge and understanding of genetics and inheritance. These data were gathered in a qualitative study using semi-structured interviews with thirty boys aged four to sixteen discussing the impact of haemophilia on their lives. Responses were tape recorded, transcribed and analysed, using thematic analysis; one of the themes identified was genetic knowledge which is presented in this paper. Genetic knowledge was formed within the context of normal day-to-day lives within families affected by haemophilia, with parents and haemophilia centre staff being sources of information about individual inheritance patterns as well as providers of information about the future genetic impact of having haemophilia.

Item Type:	Article
Uncontrolled Keywords:	carriers, children, genetics, haemophilia, inheritance, young people
Subjects:	R Medicine > R Medicine (General) R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Faculty / School / Research Centre / Research Group:	Faculty of Education, Health & Human Sciences
Related URLs:	Publisher
Last Modified:	14 Oct 2016 09:19
URI:	http://gala.gre.ac.uk/id/eprint/7528

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