Bhatt, Jem ORCID: https://orcid.org/0000-0002-7273-7234, Scior, Katrina, Stoner, Charlotte R. ORCID: https://orcid.org/0000-0002-1536-4347, Moniz-Cook, Esme and Charlesworth, Georgina (2022) Stigma among UK family carers of people living with dementia. BJPsych Open, 8 (6). ISSN 2056-4724 (Online) (doi:10.1192/bjo.2022.585)

Preview

PDF (Open Access Article) 49885 STONER_Stigma_Among_UK_Family_Carers_Of_People_Living_With_Dementia_(OA)_2022.pdf - Published Version Available under License Creative Commons Attribution. Download (345kB) | Preview

Abstract

Background: Models of caregiving seldom include the role of stigma when understanding the experiences of carers of people living with dementia.
Aims: To investigate the validity of the Family Stigma Instrument (FAMSI), and use it to explore the extent to which experiences of stigma are endorsed in family carers of people living with dementia.
Method: The FAMSI was tested with 70 carers of people living with dementia. They also completed a measure of self-esteem.
Results: The FAMSI demonstrated some good preliminary psychometric properties. Carers endorsed stigma by association more so than affiliate stigma constructs, suggesting that carers were aware that others viewed or treated them in a stigmatising fashion but did not endorse internalised consequences of this as much (e.g. behavioural or affective affiliate stigma).
Conclusions: The FAMSI offers new avenues for understanding the contribution of stigma to caregiver burden in dementia. It also captures the positive aspects of caregiving, which may mitigate internalised stigma in family carers, and has good potential for evaluating stigma-neutralising interventions in dementia care.

Item Type:	Article
Uncontrolled Keywords:	stigma and discrimination, carers, dementia, social functioning, attitudes
Subjects:	H Social Sciences > H Social Sciences (General) H Social Sciences > HN Social history and conditions. Social problems. Social reform R Medicine > R Medicine (General)
Faculty / School / Research Centre / Research Group:	Faculty of Education, Health & Human Sciences Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development > Centre for Chronic Illness and Ageing
Last Modified:	28 Feb 2025 14:13
URI:	http://gala.gre.ac.uk/id/eprint/49885

Actions (login required)

View Item

Downloads