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Feasibility and acceptability of a virtual “dementia awareness for caregivers” course in Brazil and India

Feasibility and acceptability of a virtual “dementia awareness for caregivers” course in Brazil and India

de Carvalho, Raquel Luiza Santos, Fisher, Emily, Natarajan, Nirupama, Hui, Esther K., Venkatesan, Shreenila, Vaitheswaran, Sridhar, Laksminarayanan, Monisha, Brum, Paula Schimidt, Naylor-Batista, Renata, Bertrand, Elodie, Mograbi, Daniel C., Ferri, Cleusa P., Stoner, Charlotte R. ORCID logoORCID: https://orcid.org/0000-0002-1536-4347 and Spector, Aimee (2025) Feasibility and acceptability of a virtual “dementia awareness for caregivers” course in Brazil and India. Alzheimer Disease and Associated Disorders, 39 (1). pp. 51-59. ISSN 0893-0341 (Print), 1546-4156 (Online) (doi:10.1097/WAD.0000000000000659)

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Abstract

Objective: To establish whether a virtual dementia awareness course is feasible for caregivers of people with dementia in Brazil and India.
Methods: A pre/posttest single group, multisite feasibility study, mixed methods exploratory design was applied. Primary caregivers of people with dementia in Brazil and India took a 3 to 4-hour course adapted for online delivery, with 10 to 15 caregivers. Measurements encompassed self-reports of carer competence, attitudes to dementia, and caregiver burden; satisfaction questionnaire completed immediately after the intervention; open-ended questions at 1-month follow-up to assess if caregivers applied information to caregiving role; semistructured interviews about how the intervention changed caregivers’ behavior and attitudes towards dementia.
Results: Of the 70 caregivers who received the intervention (Brazil = 34; India = 36), 54 (77.1%) completed postintervention outcomes, and 39 (55.7%) completed questionnaires at 1-month follow-up assessment. Significant improvements were observed in attitudes to dementia in both countries and self-perceived carer competence (in India) postintervention. The themes from the 9 semi-structured interviews were: acceptability, feasibility, change of behavior/attitude, and suggestions for future sessions.
Conclusions: Dementia awareness course was a feasible online intervention to improve dementia awareness among family caregivers across countries. It offers a standardized yet flexible methodology, with promising outcomes that need to be evaluated in a full randomized controlled trial.

Item Type: Article
Uncontrolled Keywords: dementia; caregiver
Subjects: L Education > L Education (General)
L Education > LC Special aspects of education
L Education > LC Special aspects of education > LC5201 Education extension. Adult education. Continuing education
Faculty / School / Research Centre / Research Group: Faculty of Education, Health & Human Sciences
Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development
Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development > Centre for Chronic Illness and Ageing
Last Modified: 28 Feb 2025 12:44
URI: http://gala.gre.ac.uk/id/eprint/49877

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