Fenia, Ferra, Eva, Drewelow, Olga, Klein, Daum, Marcel, Peggy, Walde, Kai, Gerullis, Ingo, Kilimann, Tomlin, Jack ORCID: 0000-0002-7610-7918 , Stephan, Teipel and Birgit, Völlm (2023) Implementation and evaluation of participatory advisory boards in mental health research: a research protocol of the ‘PART-Beirat’ project. Research Involvement and Engagement, 9:112. pp. 1-10. ISSN 2056-7529 (Online) (doi:https://doi.org/10.1186/s40900-023-00522-6)

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Abstract

Background
The use of participatory research approaches in the field of dementia and forensic mental health research has been on the rise. Advisory board structures, involving people with lived experience (PWLE), have frequently been used for guiding and leading research. Yet, there has been limited guidance on the establishment, retention and use of advisory boards in the field of dementia and forensic mental health research.
Objective
This project outlined in this research protocol will investigate the benefits and challenges of establishing three patient advisory boards, involving PWLE, practitioners and researchers with the purpose to guide research. Data will be used to develop guidelines for best practice in involving PWLE in dementia and forensic mental health research through advisory boards.
Methods
The research project will be divided into three phases: Phase I will involve two topic-specific systematic reviews on the use of participatory research with PWLE, followed by an initial study exploring PWLE’s, practitioners’ and researchers’ expectations on research involvement. Phase II will consist of the establishment of three advisory boards, one focusing on dementia, one on forensic mental health and one overarching coordinating advisory board, which will involve PWLE from both fields. Phase III, will consist of interviews and focus groups with advisory board members, exploring any challenges and benefits of involving PWLE and practitioners in advisory boards for guiding research. To capture the impact of involving PWLE in different research phases and tasks, interviews and focus groups will be conducted at four different points of time (0, 6, 12, 18 months). Reflexive thematic analysis will be used for the analysis of data.
Discussion
The project aims to explore the involvement of PWLE and practitioners in guiding research and aims to develop guidelines for best practice in establishing and using patient advisory boards in dementia and forensic mental health research and involving PWLE and practitioners in research.

Item Type:	Article
Uncontrolled Keywords:	participatory research; patient and public involvement (PPI); people with lived experience (PWLE); advisory boards; dementia; forensic mental health; secure hospitals
Subjects:	H Social Sciences > H Social Sciences (General) K Law > K Law (General) R Medicine > RA Public aspects of medicine
Faculty / School / Research Centre / Research Group:	Faculty of Liberal Arts & Sciences Faculty of Liberal Arts & Sciences > School of Law & Criminology (LAC)
Last Modified:	14 Dec 2023 14:21
URI:	http://gala.gre.ac.uk/id/eprint/45079

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