Ward, Richard ORCID: https://orcid.org/0000-0001-6215-7503, Rummery, Kirstein ORCID: https://orcid.org/0000-0003-4413-7394, Odzakovic, Elzana ORCID: https://orcid.org/0000-0002-8163-5045, Manji, Kainde ORCID: https://orcid.org/0000-0002-9301-9485, Kullberg, Agneta ORCID: https://orcid.org/0000-0002-5602-1332, Keady, John ORCID: https://orcid.org/0000-0001-8243-6913, Clark, Andrew ORCID: https://orcid.org/0000-0002-3684-2424 and Campbell, Sarah ORCID: https://orcid.org/0000-0002-2920-7318 (2022) Taking time: the temporal politics of dementia, care and support in the neighbourhood. Sociology of Health and Illness, 44 (9). pp. 1427-1444. ISSN 1467-9566 (Print), 0141-9889 (Online) (doi:10.1111/1467-9566.13524)

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Abstract

Dementia is a global health challenge and currently the focus of a coordinated international response articulated through the notion of ‘dementia-friendly communities and initiatives’ (DFCIs). Yet, while increasing research attention has been paid to the social and spatial dimensions to life with dementia in a neighbourhood setting, the temporalities of dementia have been largely overlooked. This article sets out different aspects of the lived experience of time for people with dementia and unpaid carers, before exploring the temporal politics of formal dementia care and support. The authors show that time is a site for material struggle and a marker of unequal relations of power. People with dementia and unpaid carers are disempowered through access to formal care, and this is illustrated in their loss of (temporal) autonomy and limited options for changing the conditions of the care received. The authors advocate for a time-space configured understanding of the relationship with neighbourhood and foreground a tempo-material understanding of dementia. Set against the backdrop of austerity policy in the UK, the findings reveal that ongoing budgetary restrictions have diminished the capacity for social care to mediate in questions of social justice and inequality, at times even compounding inequity.

Item Type:	Article
Uncontrolled Keywords:	dementia; community; neighbourhood; time; social care; austerity
Subjects:	B Philosophy. Psychology. Religion > BF Psychology H Social Sciences > H Social Sciences (General) R Medicine > RA Public aspects of medicine
Faculty / School / Research Centre / Research Group:	Faculty of Education, Health & Human Sciences Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development > Centre for Chronic Illness and Ageing
Last Modified:	26 Oct 2023 12:08
URI:	http://gala.gre.ac.uk/id/eprint/44618

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