Dutta, Oindrila ORCID: 0000-0002-2925-2477, Tan-Ho, Geraldine, Choo, Ping Ying and Ho, Andy Hau Yan (2018) Lived experience of a child's chronic illness and death: A qualitative systematic review of the parental bereavement trajectory. Death Studies, 43 (9). pp. 547-561. ISSN 0748-1187 (Print), 1091-7683 (Online)

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Abstract

To understand the lived experience of parents who have lost their child to a chronic life-limiting condition, six major databases were searched by adhering to the PRISMA guidelines. Articles were screened for appropriateness using the SPIDER tool, and relevant qualitative studies were selected for full-text data analysis using Thematic Synthesis. Findings were categorized into 13 themes that were further organized into a four-phase trajectory of parental bereavement experience of child loss, namely: Liminal Margin, Holding Space, Navigating Losses, and Reconstructing Lives. The findings are discussed in the light of existing literature with practical recommendations for enhancing parental bereavement support services.

Item Type:	Article
Uncontrolled Keywords:	qualitative systematic review; death in families; parental bereavement; child loss; grief; chronic illness
Subjects:	R Medicine > R Medicine (General)
Faculty / School / Research Centre / Research Group:	Faculty of Education, Health & Human Sciences Faculty of Education, Health & Human Sciences > School of Human Sciences (HUM)
Last Modified:	25 Apr 2023 10:06
URI:	http://gala.gre.ac.uk/id/eprint/41736

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