Essex, Ryan ORCID: 0000-0003-3497-3137 , Bruce, Gemma, Dibley, Molly, Newton, Paul ORCID: 0000-0002-8525-6763 , Thompson, Trevor ORCID: 0000-0001-9880-782X , Swaine, Ian ORCID: 0000-0002-3747-1370 and Dibley, Lesley ORCID: 0000-0001-7964-7672 (2022) A systematic scoping review and textual narrative synthesis of the qualitative evidence related to adolescent idiopathic scoliosis. International Journal of Orthopaedic and Trauma Nursing, 45:100921. ISSN 1878-1241 (doi:https://doi.org/10.1016/j.ijotn.2022.100921)

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Abstract

Introduction
This systematic scoping review sought to summarise and synthesise the qualitative evidence on adolescent idiopathic scoliosis (AIS) to understand the experiences of AIS, and of its diagnosis and treatment, and effective coping strategies to inform directions for future research.

Method
A systematic scoping review and textual narrative synthesis was undertaken. Qualitative or mixed-methods studies with extractable qualitative data were included if participants had AIS, and patient or patient relative perspectives about AIS or its treatment were reported.

Results
Fifteen papers were included. These suggested that AIS can influence self-image and perceptions of appearance and can cause those with the condition to reluctantly adjust parts of their lives and avoid some activities. The diagnosis and treatment of AIS is a major event and is often accompanied by shock, uncertainty, and anxiety. Whilst some find surgery stressful, others were relieved to have the surgery, and were generally happy with the outcome. Immediate family members may be distressed by the diagnosis and treatment of AIS.

Discussion
AIS diagnosis and treatment has a substantial impact on adolescents and their families that is only addressed in part in this review. There is a pressing need for more qualitative research to understand needs, perspectives and experiences of adolescents with AIS and their families from the point of diagnosis, throughout treatment, and in the longer-term.

Item Type:	Article
Uncontrolled Keywords:	AIS, scoliosis, adolescent idiopathic scoliosis, qualitative, systematic review
Subjects:	R Medicine > RB Pathology R Medicine > RD Surgery
Faculty / School / Research Centre / Research Group:	Faculty of Education, Health & Human Sciences Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development > Centre for Chronic Illness and Ageing Faculty of Education, Health & Human Sciences > School of Health Sciences (HEA)
Last Modified:	14 Jan 2023 01:38
URI:	http://gala.gre.ac.uk/id/eprint/34750

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