carers

Semrov, Ana, Tadic, Valerija ORCID: 0000-0003-3982-0340 and Rahi, Jugnoo (2023) Vision-related quality of life and mental health outcomes of children and young people with visual impairment and their carers [ISPOR Abstracts 07 May 2023 - 10 May 2023]. In: Value in Health. Elsevier - Science Direct, New York, S318-S318. ISSN 1098-3015 (Print), 1524-4733 (Online) (doi:https://doi.org/10.1016/j.jval.2023.03.1816)

child and family

Kellett, Salomey, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:https://doi.org/10.1080/23995270.2024.2366153)

childhood

Semrov, Ana, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2023) Individual, family, and environmental determinants of vision-related quality of life of children and young people with visual impairment. PLoS ONE, 18 (11):e0294532. pp. 1-14. ISSN 1932-6203 (Online) (doi:https://doi.org/10.1371/journal.pone.0294532)

children and young people

Semrov, Ana, Tadic, Valerija ORCID: 0000-0003-3982-0340 and Rahi, Jugnoo (2023) Vision-related quality of life and mental health outcomes of children and young people with visual impairment and their carers [ISPOR Abstracts 07 May 2023 - 10 May 2023]. In: Value in Health. Elsevier - Science Direct, New York, S318-S318. ISSN 1098-3015 (Print), 1524-4733 (Online) (doi:https://doi.org/10.1016/j.jval.2023.03.1816)

Robertson, Alexandra O., Tadić, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2020) Feasibility of using patient-reported outcome measures with visually impaired children/young people attending paediatric ophthalmology clinics. Archives of Diseases in Childhood, 106 (7). pp. 687-692. ISSN 0003-9888 (Print), 1468-2044 (Online) (doi:https://doi.org/10.1136/archdischild-2020-318991)

Robertson, Alexandra, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2020) A patient-reported outcome measure of functional vision for children and young people aged 8 to 18 years with visual impairment. American Journal of Ophthalmology, 219. pp. 141-153. ISSN 0002-9394 (Print), 1879-1891 (Online) (doi:https://doi.org/10.1016/j.ajo.2020.04.021)

Tadic, Valerija ORCID: 0000-0003-3982-0340 , Robertson, Alexandra, Cortina-Borja, Mario and Rahi, Jugnoo (2019) Age-and stage-appropriate measurement of vision-related quality of life (VQoL) of children and young people with visual impairment. Ophthalmology, 127 (2). pp. 249-260. ISSN 0161-6420 (doi:https://doi.org/10.1016/j.ophtha.2019.08.033)

experiences

Solebo, Ameenat Lola, Kellet, Salomey, Rahi, Jugnoo, Dick, Andrew D., Knowles, Rachel and Tadic, Valerija ORCID: 0000-0003-3982-0340 (2022) Perceptions and experiences of health care service use during the pandemic for children with uveitis: UNICORNS-C19 study. In: Investigative Ophthalmology and Visual Science. 2022 ARVO Annual Meeting, Denver, CO, 1st - 4th May 2022, 63 (7). Association for Research in Vision and Ophthalmology (ARVO), Rockville, USA, 4468 -A0178. ISSN 0146-0404 (Print), 1552-5783 (Online)

feasibility

Robertson, Alexandra O., Tadić, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2020) Feasibility of using patient-reported outcome measures with visually impaired children/young people attending paediatric ophthalmology clinics. Archives of Diseases in Childhood, 106 (7). pp. 687-692. ISSN 0003-9888 (Print), 1468-2044 (Online) (doi:https://doi.org/10.1136/archdischild-2020-318991)

functional vision

Robertson, Alexandra, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2020) A patient-reported outcome measure of functional vision for children and young people aged 8 to 18 years with visual impairment. American Journal of Ophthalmology, 219. pp. 141-153. ISSN 0002-9394 (Print), 1879-1891 (Online) (doi:https://doi.org/10.1016/j.ajo.2020.04.021)

healthcare disruption

Kellett, Salomey, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:https://doi.org/10.1080/23995270.2024.2366153)

healthcare services

Kellett, Salomey, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:https://doi.org/10.1080/23995270.2024.2366153)

lived experience

Robertson, Alexandra, Tadic, Valerija ORCID: 0000-0003-3982-0340 and Rahi, Jugnoo (2021) This is me: A qualitative investigation of young people’s experience of growing up with visual impairment. PLoS ONE, 16 (7):e0254009. ISSN 1932-6203 (Online) (doi:https://doi.org/10.1371/journal.pone.0254009)

mental health

Semrov, Ana, Tadic, Valerija ORCID: 0000-0003-3982-0340 and Rahi, Jugnoo (2023) Vision-related quality of life and mental health outcomes of children and young people with visual impairment and their carers [ISPOR Abstracts 07 May 2023 - 10 May 2023]. In: Value in Health. Elsevier - Science Direct, New York, S318-S318. ISSN 1098-3015 (Print), 1524-4733 (Online) (doi:https://doi.org/10.1016/j.jval.2023.03.1816)

paediatric ophthalmology

Robertson, Alexandra O., Tadić, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2020) Feasibility of using patient-reported outcome measures with visually impaired children/young people attending paediatric ophthalmology clinics. Archives of Diseases in Childhood, 106 (7). pp. 687-692. ISSN 0003-9888 (Print), 1468-2044 (Online) (doi:https://doi.org/10.1136/archdischild-2020-318991)

pandemic

Solebo, Ameenat Lola, Kellet, Salomey, Rahi, Jugnoo, Dick, Andrew D., Knowles, Rachel and Tadic, Valerija ORCID: 0000-0003-3982-0340 (2022) Perceptions and experiences of health care service use during the pandemic for children with uveitis: UNICORNS-C19 study. In: Investigative Ophthalmology and Visual Science. 2022 ARVO Annual Meeting, Denver, CO, 1st - 4th May 2022, 63 (7). Association for Research in Vision and Ophthalmology (ARVO), Rockville, USA, 4468 -A0178. ISSN 0146-0404 (Print), 1552-5783 (Online)

patient experience

Kellett, Salomey, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:https://doi.org/10.1080/23995270.2024.2366153)

patient-reported outcome measure

Robertson, Alexandra O., Tadić, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2020) Feasibility of using patient-reported outcome measures with visually impaired children/young people attending paediatric ophthalmology clinics. Archives of Diseases in Childhood, 106 (7). pp. 687-692. ISSN 0003-9888 (Print), 1468-2044 (Online) (doi:https://doi.org/10.1136/archdischild-2020-318991)

qualitative research

Robertson, Alexandra, Tadic, Valerija ORCID: 0000-0003-3982-0340 and Rahi, Jugnoo (2021) This is me: A qualitative investigation of young people’s experience of growing up with visual impairment. PLoS ONE, 16 (7):e0254009. ISSN 1932-6203 (Online) (doi:https://doi.org/10.1371/journal.pone.0254009)

quality of life

Semrov, Ana, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2023) Individual, family, and environmental determinants of vision-related quality of life of children and young people with visual impairment. PLoS ONE, 18 (11):e0294532. pp. 1-14. ISSN 1932-6203 (Online) (doi:https://doi.org/10.1371/journal.pone.0294532)

telemedicine

Kellett, Salomey, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:https://doi.org/10.1080/23995270.2024.2366153)

uveitis

Solebo, Ameenat Lola, Kellet, Salomey, Rahi, Jugnoo, Dick, Andrew D., Knowles, Rachel and Tadic, Valerija ORCID: 0000-0003-3982-0340 (2022) Perceptions and experiences of health care service use during the pandemic for children with uveitis: UNICORNS-C19 study. In: Investigative Ophthalmology and Visual Science. 2022 ARVO Annual Meeting, Denver, CO, 1st - 4th May 2022, 63 (7). Association for Research in Vision and Ophthalmology (ARVO), Rockville, USA, 4468 -A0178. ISSN 0146-0404 (Print), 1552-5783 (Online)

vision related quality of life

Semrov, Ana, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Cortina Borja, Mario and Rahi, Jugnoo (2023) Determinants of vision-related quality of life of children and young people with visual impairment. In: Investigative Ophthalmology and Visual Science. ARVO Annual Meeting Abstracts, 64 (8). Association for Research in Vision and Ophthalmology (ARVO), Rockville, MD, p. 871. ISSN 0146-0404 (Print), 1552-5783 (Online)

Semrov, Ana, Tadic, Valerija ORCID: 0000-0003-3982-0340 and Rahi, Jugnoo (2023) Vision-related quality of life and mental health outcomes of children and young people with visual impairment and their carers [ISPOR Abstracts 07 May 2023 - 10 May 2023]. In: Value in Health. Elsevier - Science Direct, New York, S318-S318. ISSN 1098-3015 (Print), 1524-4733 (Online) (doi:https://doi.org/10.1016/j.jval.2023.03.1816)

Tadic, Valerija ORCID: 0000-0003-3982-0340 , Robertson, Alexandra, Cortina-Borja, Mario and Rahi, Jugnoo (2019) Age-and stage-appropriate measurement of vision-related quality of life (VQoL) of children and young people with visual impairment. Ophthalmology, 127 (2). pp. 249-260. ISSN 0161-6420 (doi:https://doi.org/10.1016/j.ophtha.2019.08.033)

visual impairment

Semrov, Ana, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Cortina Borja, Mario and Rahi, Jugnoo (2023) Determinants of vision-related quality of life of children and young people with visual impairment. In: Investigative Ophthalmology and Visual Science. ARVO Annual Meeting Abstracts, 64 (8). Association for Research in Vision and Ophthalmology (ARVO), Rockville, MD, p. 871. ISSN 0146-0404 (Print), 1552-5783 (Online)

Semrov, Ana, Tadic, Valerija ORCID: 0000-0003-3982-0340 and Rahi, Jugnoo (2023) Vision-related quality of life and mental health outcomes of children and young people with visual impairment and their carers [ISPOR Abstracts 07 May 2023 - 10 May 2023]. In: Value in Health. Elsevier - Science Direct, New York, S318-S318. ISSN 1098-3015 (Print), 1524-4733 (Online) (doi:https://doi.org/10.1016/j.jval.2023.03.1816)

Robertson, Alexandra, Tadic, Valerija ORCID: 0000-0003-3982-0340 and Rahi, Jugnoo (2021) This is me: A qualitative investigation of young people’s experience of growing up with visual impairment. PLoS ONE, 16 (7):e0254009. ISSN 1932-6203 (Online) (doi:https://doi.org/10.1371/journal.pone.0254009)

Robertson, Alexandra O., Tadić, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2020) Feasibility of using patient-reported outcome measures with visually impaired children/young people attending paediatric ophthalmology clinics. Archives of Diseases in Childhood, 106 (7). pp. 687-692. ISSN 0003-9888 (Print), 1468-2044 (Online) (doi:https://doi.org/10.1136/archdischild-2020-318991)

Robertson, Alexandra, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2020) A patient-reported outcome measure of functional vision for children and young people aged 8 to 18 years with visual impairment. American Journal of Ophthalmology, 219. pp. 141-153. ISSN 0002-9394 (Print), 1879-1891 (Online) (doi:https://doi.org/10.1016/j.ajo.2020.04.021)

Tadic, Valerija ORCID: 0000-0003-3982-0340 , Robertson, Alexandra, Cortina-Borja, Mario and Rahi, Jugnoo (2019) Age-and stage-appropriate measurement of vision-related quality of life (VQoL) of children and young people with visual impairment. Ophthalmology, 127 (2). pp. 249-260. ISSN 0161-6420 (doi:https://doi.org/10.1016/j.ophtha.2019.08.033)

visual ipairment

Semrov, Ana, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Cortina-Borja, Mario and Rahi, Jugnoo (2023) Individual, family, and environmental determinants of vision-related quality of life of children and young people with visual impairment. PLoS ONE, 18 (11):e0294532. pp. 1-14. ISSN 1932-6203 (Online) (doi:https://doi.org/10.1371/journal.pone.0294532)

young people

Robertson, Alexandra, Tadic, Valerija ORCID: 0000-0003-3982-0340 and Rahi, Jugnoo (2021) This is me: A qualitative investigation of young people’s experience of growing up with visual impairment. PLoS ONE, 16 (7):e0254009. ISSN 1932-6203 (Online) (doi:https://doi.org/10.1371/journal.pone.0254009)