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An evaluation of the implementation of hand held health records with adults with learning disabilities: a cluster randomized controlled trial

An evaluation of the implementation of hand held health records with adults with learning disabilities: a cluster randomized controlled trial

Turk, Vicky, Burchell, Sarah, Burrha, Sukhjinder, Corney, Roslyn, Elliott, Sandra, Kerry, Sally, Molloy, Catherine and Painter, Kerry (2009) An evaluation of the implementation of hand held health records with adults with learning disabilities: a cluster randomized controlled trial. Journal of Applied Research in Intellectual Disabilities, 23 (2). pp. 100-111. ISSN 1360-2322 (Print), 1468-3148 (Online) (doi:10.1111/j.1468-3148.2009.00518.x)

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Abstract

Background: Personal health records were implemented with adults with learning disabilities (AWLD) to try to improve their health-care. Materials and Method: Forty GP practices were randomized to the Personal Health Profile (PHP) implementation or control group. Two hundred and one AWLD were interviewed at baseline and 163 followed up after 12 months intervention (PHP group). AWLD and carers of AWLD were employed as research interviewers. AWLD were full research participants. Results: Annual consultation rates in the intervention and control groups at baseline were low (2.3 and 2.6 visits respectively). A slightly greater increase occurred over the year in the intervention group 0.6 ()0.4 to 1.6) visits ⁄ year compared with controls. AWLD in PHP group reported more health problems at follow-up 0.9 (0.0 to 1.8). AWLD liked their PHP (92%) but only 63% AWLD and 55% carers reported PHP usage. Carers had high turnover (34%). Conclusions: No significant outcomes were achieved by the intervention.

Item Type: Article
Additional Information: [1] First published online: 9th September 2009. [2] Published in print: March 2010. [3] Issue published online: 21 FEB 2010. [4] Published as: Journal of Applied Research in Intellectual Disabilities, (2010), Vol. 23, (2), pp. 100–111. [5] The Journal of Applied Research in Intellectual Disabilities is published on behalf of the British Institute of Learning Disabilities.
Uncontrolled Keywords: hand held record, patient centred care, primary health care, randomized controlled trial,
Subjects: B Philosophy. Psychology. Religion > BF Psychology
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Pre-2014 Departments: School of Health & Social Care
School of Health & Social Care > Department of Psychology & Counselling
Related URLs:
Last Modified: 14 Oct 2016 09:07
Selected for GREAT 2016: None
Selected for GREAT 2017: None
Selected for GREAT 2018: None
URI: http://gala.gre.ac.uk/id/eprint/2863

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