child and family

Kellett, Salomey, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:https://doi.org/10.1080/23995270.2024.2366153)

healthcare disruption

Kellett, Salomey, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:https://doi.org/10.1080/23995270.2024.2366153)

healthcare services

Kellett, Salomey, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:https://doi.org/10.1080/23995270.2024.2366153)

patient experience

Kellett, Salomey, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:https://doi.org/10.1080/23995270.2024.2366153)

telemedicine

Kellett, Salomey, Tadic, Valerija ORCID: 0000-0003-3982-0340 , Petrushkin, Harry, Ashworth, Jane, Connor, Alan, McLoone, Eibhlin, Sharma, Srilakshmi, Agorogiannis, Eleftherios, Watts, Patrick, Hughes, Edward, Ritchie, Ailsa, Pilling, Rachel, Benzimra, James, Marsh, Catherine, Pharoah, Daniel, Choi, Jessy, Dick, Andrew, Rahi, Jugnoo and Solebo, Ameenat (2024) Supporting positive patient experiences for rare disease care during disruptive times: findings from a national study. Future Rare Diseases, 4 (1). pp. 1-13. ISSN 2399-5270 (Online) (doi:https://doi.org/10.1080/23995270.2024.2366153)