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Development and acceptability of a brief, evidence-based dementia awareness for caregivers course in low- and middle-income countries

Development and acceptability of a brief, evidence-based dementia awareness for caregivers course in low- and middle-income countries

Stoner, Charlotte R. ORCID: 0000-0002-1536-4347, Lakshminarayanan, Monisha, Mograbi, Daniel C, Vaitheswaran, Sridhar, Bertrand, Elodie, Schimidt Brum, Paula, Durgante, Helen, Ferri, Cleusa P, Mkenda, Sarah, Walker, Richard, Dotchin, Catherine, Paddick, Stella-Maria, Chandra, Mina, Krishan, Murali, Bharath, DU, Shaji, Kunnukattil Sivaraman, Fisher, Emily and Spector, Aimee (2021) Development and acceptability of a brief, evidence-based dementia awareness for caregivers course in low- and middle-income countries. Dementia. ISSN 1471-3012 (Print), 1741-2684 (Online) (In Press) (doi:https://doi.org/10.1177/14713012211055316)

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Abstract

Background
Knowledge of and attitudes towards dementia vary across countries, and for caregivers in low- and middle-income countries (LMICs), access to information can be challenging. There is an urgent need for brief, easily accessible and culturally appropriate educational courses for caregivers of persons with dementia, providing much needed information whilst addressing important psychological concepts such as stigma.

Methods
An international and multidisciplinary team developed Dementia Awareness for Caregivers (DAC) courses in four stages: (1) scoping review and module agreement, (2) development of an International template (DAC-International) containing a standardised process for adding information, (3) development of local DACs using a standardised format and (4) acceptability of courses in Brazil, India and Tanzania.

Findings
The DAC-International was developed, comprising three modules: ‘What is dementia?’; ‘Positive engagement’ and ‘Caring for someone with dementia’. Three local versions were developed from this (DAC-Brazil, DAC-India and DAC-Tanzania), where additions of country-specific information included prevalent stereotypes and the addition of culturally relevant case studies. An initial field test was conducted in each country (n = 85), which indicated acceptability to participants.

Conclusions
The methods used here resulted in culturally valid and acceptable educational courses for carers of people with dementia. Future work will consist of large-scale, formal evaluations and the development of additional local courses.

Item Type: Article
Uncontrolled Keywords: education, dementia, intervention, caregiving, stigma.
Subjects: B Philosophy. Psychology. Religion > BF Psychology
L Education > LC Special aspects of education > LC5201 Education extension. Adult education. Continuing education
R Medicine > RT Nursing
Faculty / School / Research Centre / Research Group: Faculty of Education, Health & Human Sciences
Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development
Faculty of Education, Health & Human Sciences > Institute for Lifecourse Development > Centre for Chronic Illness and Ageing
Faculty of Education, Health & Human Sciences > School of Human Sciences (HUM)
Last Modified: 04 Jan 2022 13:16
Selected for GREAT 2016: None
Selected for GREAT 2017: None
Selected for GREAT 2018: None
Selected for GREAT 2019: None
Selected for REF2021: None
URI: http://gala.gre.ac.uk/id/eprint/34258

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