Pitsillides, Stacey ORCID: 0000-0003-0961-5370 (2018) Co-Designing with the Bereaved: how Curatorial Dilemmas become Ethical Reflections. [Working Paper] (Submitted)

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Abstract

This paper explores how co-design can challenge the role of collaboration within hospice-based research. It demonstrates how an exhibition of co-designed artifacts creates new forms of discursive knowledge and ethical considerations. This research aims to reflect on a holistic collaboration with bereaved stakeholders who are intuitionally considered as vulnerable by Research Ethics Committees and to break-down their role within the research. From re-defining initial research questions through to co-curating two public exhibitions across a five-year collaboration. It considers how exhibitions can be used generatively to close the design cycle and allow for knowledge to be expanded across various interdisciplinary audiences. Through this it reflects on the ethical underpinning of exhibiting sensitive works by exploring how the details of a curation such as typography, labeling, lighting and structure show how a researcher respects an individuals work, allowing for the continuous negotiation of power and hierarchy. This constructs a set of principles for co-designing with the bereaved that provides a flexible structure for other researchers to use when designing their own interactions with stakeholders. By using a range of principles, it aims to avoid tokenism and puts collaborators at the heart of the research process.

Item Type:	Working Paper
Uncontrolled Keywords:	co-design, co-curation, ethics, bereavement, hospice, exhibition
Subjects:	N Fine Arts > NX Arts in general
Faculty / School / Research Centre / Research Group:	Faculty of Liberal Arts & Sciences Faculty of Liberal Arts & Sciences > School of Design (DES)
Last Modified:	08 Mar 2019 13:07
URI:	http://gala.gre.ac.uk/id/eprint/23015

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